Buckie sensory appeal for Kai
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A BUCKIE family have launched an appeal to help their young son who is battling a rare condition.
Kai Urquhart, 21 months, who lives with parents Alan (39) and Lorna (36) on Buckie’s Silberg Drive, suffers from the genetic condition known as Joubert syndrome, believed to affect around only 40 others in the UK.
His symptoms affect nearly every aspect of his life, leaving him with severely impaired eyesight, a greatly weakened musculature meaning he cannot stand unaided, delayed development, unable to speak or control his body temperature.
Lorna and Alan have launched an appeal to help them build a sensory hut in the garden of their home which they believe will help safeguard the progress their son has made so far and perhaps improve his condition.
"After he was diagnosed with Joubert’s syndrome we were told to keep stimulating Kai with lights, which we’ve been doing every day," Lorna told the ‘Advertiser’. "He’s always liked lights and loves music, too. The sensory hut alone costs at least £6,000 to buy, and the sensory equipment doesn’t come cheap."
The family are holding a coffee morning on Saturday April 18 in the North Church Hall from 9.30am to 11.30am.
Any individual, business or group who would like to donate a raffle prize should contact Lorna on 07894 668688.
To read the full, exclusive story pick up ‘The Banffshire Advertiser’ print version from Tuesday.
